Thoughts from The Mayor of Worldwide Breast Cancer

Mapping the Journey of The Worldwide Breast Cancer Project

Archive for what lemonland is building

Technology Partner Wanted

It has been a crazy but wonderful year. I’m just weeks away from finishing my PhD thesis, am starting a new job in September at a university in London, and have a whole new set of plans for expanding Worldwide Breast Cancer.

For the past four years, I’ve been researching how visitors have been using worldwidebreastcancer.com. I’ve learned what people are searching for, what pages are the most popular and how it could be designed to make it even better. Over 50,000 people have been educated by the website so far, which is incredible and I want that number to grow even more!

Nearly every week I receive an email from someone who has been excited about my work, organizations that want to use the posters and people who are running events. You truly inspire me with all the work you do! I’m so lucky to be part of such a meaningful worthwhile cause.

I’ve thought of all sorts of options to build the website as a step to turning it into a real resource for people: using my savings to pay for someone’s time, looking into student volunteer programmers to help with parts of the coding of the website, running a wordpress event to code the new site, etc. After some talks with some real pros in the area, I’ve come to the conclusion that what I really need is someone who is brilliant at all sorts of web development stuff that is able to donate their skills as a partner in the project because they are passionate like me about spreading awareness. Someone that I can collaborate with over the long term to really make it succeed. The plan is to turn WBC into a global organization and attract funding to expand its efforts. Could you be the partner I’m looking for?

Here’s the kind of skills I’m looking for:

  • Someone who is really passionate about breast cancer.
  • Someone who is looking for a long-term rewarding project and has the time to donate the odd hour or two a week.
  • A fun, collaborative person who is creative and up for pushing the boundaries of web media and likes to expand their knowledge base.
  • Someone who can turn a psd file into a robust WordPress template, with all of the standard compliances using CSS, php, xhtml.
  • Ideally someone who can also design a mobile version of the site, further down the road.
  • Social media integration.
  • Experience in building a multiple language website.
  • Good at communicating.

This post would also not be complete without a big thank you to Trevor Davis, who for the last four years has been so good to volunteer his time and passion to building the website today. Without him, I would not have been able to reach the people I have, thank you Trevor! And congrats on your wedding!

Also, Andres at CartoSoft is a star. He was able to make a google map of breast cancer screening centers in the US and UK. I spent a month validating each of the 2,000 addresses (phew!) and he took the design and database and turned it into a very handy resource. If you haven’t seen the breast cancer map already, have a look!

If you are interested in joining the Worldwide Breast Cancer team, please send me an email to: mayor *at* lemonland.org

Key words: web developer wanted, wordpress, css, breast cancer, php, web programmer

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My new purchase: 9,000 mammography centers

That’s right, today I bought 9,000 fda approved mammography centers from the US Government Information folks, and it only cost $85. I’m hoping to put them all on a map for you real soon!

It’s getting exciting!

NetSquared Mashup Challenge

It has been a busy few months…mostly because I’m getting married in a few weeks!…but I couldn’t pass up this opportunity to submit my breast cancer project to the Netsquared Mashup Challenge and ask for your feedback (and hopefully your vote!).

A new site in wordpress!

Trevor, my trusty web guy has convinced me to put the new lemonland.org in wordpress. It will be a great change to have all of the pages editable online, and better keep up with the content, built-in search and all sorts of other fun features. The new website will be online in time for October, Breast Cancer Awareness Month! I can’t wait for the unveiling.

Is what I’m reading right or wrong? A Breast Cancer Guide

There is a lot of information available online about breast cancer, but it’s a bit of a mess! Scattered all over the internet—how can you tell which information is credible or rumour? Current or old? Have the statistics been used correctly, or inflated to cause a stir? Wait, we’re looking for answers not more questions! sigh

So what if we could bring experts together to fix this? (Sorry last question) By building an online tool, a breast cancer encyclopedia of sorts, this can help. Researchers after completing a study can add their results to a Breast Cancer Guide, update old definitions of terms relating to breast cancer and share their knowledge. Here is an example of how this would work:

Patient A is on a particular medication and has looked online for more information. What is found is a statement made by Patient B claiming that 50% of people on this medication have kidney failure. This statement can be pulled into Lemonland where the guide can highlight terms available for reference. In this case, “kidney” and the name of the medication would be highlighted. With a click, Patient A could read definitions of the medication, see the average dose of a patient with their similar symptoms, and see a list of studies about the medication. Looking for “kidney” in these studies would show if Patient B’s claim was founded or not.

Patient A would be able add a link to Patient B’s statement, leaving a legacy for the next person to find the information. A Breast Cancer Guide would help people to sort fact from fiction and look at information in an informed way. Providing better treatment and communication with physicians.